Like many kids, Rich didn’t know much about other diseases and didn’t quite yet understand why a hospital can’t cure his brother, Terry. He's one of the 30 million who are impacted and there's a number of rare diseases out there, Duchenne is one of them, there are still over 7000 others.
Sharing his story with us, Rich explains that growing up, he would watch other kids play and run around while his brother was growing weaker and weaker, and every doctor they went to would give them the same answer, that there was no treatment.
As he got older and started asking bigger questions, the brutal reality dawned on him.
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Rich will be giving a 30-minute session where you can openly talk to him about your experience with a rare disease and he will try to help out.